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WELCOME

Welcome to PNH Support! We are a group of PNH patients in England, Wales and Northern Ireland who have formed a community in order to support each other and speak with one voice. We also wanted a place where patients and their families could find relevant and reliable information about this rare disease all in one place.


OUR VISION

Excellence in PNH patient support.


OUR MISSION

To reduce fear and isolation by education, support and collaboration.

 

SAVE THE DATE

PNH Patient and Family Conference

Date: 30 June 2018

Venue: BVSC, The Centre of Voluntary Action, 138 Digbeth, Birmingahm, B5 6DR, UK 

RSVP (and for more details): contact@pnhuk.org by 1 June 2018

 

 

 

 

 

 

 
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